December 13, 2018

The Unique Challenges Facing LGBTQ People With Dementia

by Diverse Elders Coalition

Social isolation, health disparities and barriers to services

“LGBT and Dementia,” a recently released report by the Alzheimer’s Association and SAGE, outlines the unique challenges facing LGBTQ older adults living with Alzheimer’s and other dementias and their caregivers. The report outlines the unique issues that arise when Alzheimer’s disease, sexual orientation and gender identification and expression intersect.

“Living with Alzheimer’s or another dementia is not easy for anyone,” said Sam Fazio, director of quality care and psycho-social research at the Alzheimer’s Association. “But LGBT individuals can often face additional challenges that need to be considered and addressed to ensure this population gets respectful and competent care.”

»Read full article on nextavenue website

December 13, 2018

Senior Housing Facilities in Chicago: Creating Communities for LGBT Elders

When searching for a senior housing facility, most people ask the standard questions: What are the meals like? What are the costs?

But for LGBT people, the process becomes more complicated because they have to consider how LGBT-friendly the home is. Luckily, new diversity trainings for senior homes can help staff treat LGBT residents with respect and dignity.

Older LGBT people often face discrimination, especially in senior housing. LGBT senior Marsha Wetzel said she faced harassment and violence in her Niles nursing home and is now seeking legal redress. And in 2014, the National Resource Center on LGBT Aging Found that 46 percent of same-sex couples confronted adverse and differential treatment – ranging from gossip to violence- in their senior housing facilities.

But older LGBT people are more likely to be single and without children, forcing them to move into a home so they can receive care and not feel alone. With these shocking statistics and news stories about how LGBT people are treated in homes, it’s no surprise that 33 percent of LGBT seniors fear they would have to hide their sexuality in a nursing home.

»Read the full article at Medill Reports Chicago

December 11, 2018

Bereavement Considerations for LGBTQI+ People

by Lavina E. Tomer, Southern Arizona Senior Pride
»Download PDF

LGBTQI+ people may experience loss with unique intensity. Why? This article was used as a hand-out in a presentation to hospice bereavement counselors and chaplains.

Studies, professional experience and personal reports indicate that: isolation, disclosure of identity and acknowledgment of relationships, life experiences that include bullying, violence, living with secrets, and fear of living an open, authentic life influence this community’s bereavement process. Being a member of a minority community that is marginalized, neglected, and hated must also be examined. All of these factors may increase the risk of heightened or prolonged bereavement, depression, compounded grief and disenfranchised grief. Fear of seeking professional help and bereavement support remain as barriers…

»Read full article

December 11, 2018

After Facing Violence in Her Senior Living Home, LGBT Woman Goes to Court

After grieving the loss of her partner of 30 years, Marsha Wetzel, 70, moved into Glen St. Andrew Living Community, a senior housing facility in Niles in November 2014.

Wetzel signed a tenant agreement that guaranteed her three meals a day, laundry services and access to a community room. It also asked that she refrain from “activity that [St. Andrew] determines unreasonably interferes with the peaceful use and enjoyment of the community by other tenants” or that is “a direct threat to the health and safety of other individuals.” All other residents signed a similar agreement, binding them to this code of conduct.

Wetzel, who identifies as lesbian, was open about her sexuality with staff and residents. But instead of a warm welcome, she received hostility, she said. Other tenants called her derogatory slurs and made violent threats against her and these threats soon became reality, as other tenants spit at her and struck her in the head.

»Read full article on Medill Reports Chicago

September 27, 2018

Pride Through the Ages

When Robert Bell and a man he was dating in the early ’70s broke up, the man threatened to call Bell’s boss and out him as gay, in hopes of getting him fired. When Roger Osgood went to his first gay bar in the ’70s at age 28, he was absolutely petrified but knew it was the only place he could meet people who were like him. When Lavina Tomer came out as a lesbian to her family in the ’70s, she was relieved they didn’t kick her out of the family… Society has come a long way in its treatment of the LGBTQ+ community, but as one aspect of their identities has become more accepted, they’ve gained another trait that, in some ways, has pushed them back toward the outskirts…

»Read Tucson Weekly’s cover story for the week of September 27, 2018, which explores how Southern Arizona Senior Pride protects older LGBTQ+ adults from isolation and discrimination.

September 22, 2018

You Have the Power to Prevent Falls

Did you know that deaths from unintentional injuries are the seventh leading cause of death among older adults, and falls account for the largest percentage of those deaths (Centers for Disease Control and Prevention)? September 22, 2018 was the 11th Annual National Falls Prevention Day. In acknowledgement, Southern Arizona Senior Pride provides the links below to articles containing useful tips and insights, as well as suggestions for distributing information about falls prevention to your caregiver network.

»Falling is Not a Normal Part of Aging

»6 Steps to Prevent a Fall

»New Thinking on Avoiding Deadly Falls

»How to Fall Safely: Simple rules for hitting the ground as softly as possible

Need help distributing information about preventing falls to your caregiver network?
»Sample social media messages, chock full of links to brochures, posters and videos

September 19, 2018

LGBT and Dementia

“This paper is divided into three sections. First, we present a general overview of the situation faced by LGBT older adults, people living with Alzheimer’s or another dementia, and caregivers. Next, we look at seven areas where LGBT identities intersect with Alzheimer’s disease: stigma, social isolation, poverty, health disparities, sexuality and sexual expression, barriers to utilizing existing services and living with HIV/AIDS. Finally, we conclude with recommendations in the areas of practice and research, recognizing that all changes to organization practice require a shift in policy and procedure…”

»Read the full paper on the SAGE site

August 17, 2018

A Retirement Community Turned Away These Married Women

Mary Walsh and Beverly Nance did considerable research in 2016 before deciding to move into a continuing care retirement community outside St. Louis. They took a tour of Friendship Village Sunset Hills and were impressed by its pool and fitness center, a calendar crammed with activities, the newly built apartments for independent living. They had meals with a friend and with a former co-worker, and their spouses, all of them enthusiastic residents. “We’d met other people from the community, and they were very friendly,” said Ms. Walsh, 72, a retired manager for AT&T. “I was feeling good about it…”

»Read the full article in the New York Times

June 6 2018

Fighting Isolation to Support Rural LGBTQ Elders

by John Welsh

Potlucks and social networks help, as does training for health care staff

Potluck dinners may not solve the challenges faced by rural LGBTQ elders, but they are a frequent tool to fight the isolation faced by this vulnerable group.

They include a monthly discussion group organized by older lesbians in Montpelier, Vt. Dinners put on by the national group SAGE — which stands for Advocacy and Services for LGBT Elders — connecting older and younger members of the community are held each year.

»Read full article on the nextavenue website

May 14, 2018

A look inside a surprising bullying battleground: senior centers

SAN FRANCISCO (AP) — The unwanted were turned away from cafeteria tables. Fistfights broke out at karaoke. Dances became breeding grounds for gossip and cruelty.

It became clear this place had a bullying problem on its hands. What many found surprising was that the perpetrators and victims alike were all senior citizens.

Nursing homes, senior centers and housing complexes for the elderly have introduced programs, training and policies aimed at curbing spates of bullying, an issue once thought the exclusive domain of the young.

»Read full article on

May 9, 2018

Caregiving in the LGBT Community

LGBT people are more likely to become adult caregivers than the rest of the population, according to a 2015 AARP/National Alliance for Caregiving report. According to a study by SAGE, a national LGBT advocacy organization, about one in three older LGBT adults live alone, and 40 percent say their support networks have become smaller. In what way does being an LGBT caregiver differ? Here’s one way: “If you are in a non-married LGBT relationship, your relationship is not recognized by law,” says the Family Caregiver Alliance. “Under these circumstances, biological family members sometimes step in, take over decision-making authority, and exclude partners and close friends from being involved in the care of your friend or loved one…”

»Read full article at the San Diego Union-Tribune

May 7, 2018

St. Louis University Study Examines End-of-Life Care Perceptions in LGBT Older Adults

by Daniel B. Stewart et al

Little is known about what LGBT older adults think of, prepare for, and want for their end-of-life care experience. In order to fill the gap in knowledge, two researchers from Saint Louis University performed a study in which 17 LGBT individuals, 60 years and older were asked these questions:

1. What are LGBT older adults’ perceptions of end-of-life care?
2. Do LGBT older adults think and plan for their end-of-life care?
3. What are the concerns and challenges for LGBT older adults as they work toward their “ideal” end-of-life care experiences?

»Read concise summary of this study (on “issuu” interface)

April 20, 2018: New Book that Looks at the Lives of Trans and Gender Nonconforming Older Adults

To Survive on This Shore

Representations of older transgender people are nearly absent from our culture and those that do exist are often one-dimensional. For over five years, photographer Jess T. Dugan and social worker Vanessa Fabbre traveled throughout the United States creating To Survive on this Shore: Photographs and Interviews with Transgender and Gender Non-Conforming Older Adults. Seeking subjects whose lived experiences exist within the complex intersections of gender identity, age, race, ethnicity, sexuality, socioeconomic class, and geographic location, they traveled from coast to coast, to big cities and small towns, documenting the life stories of this important but largely underrepresented group of older adults. The featured individuals have a wide variety of life narratives spanning the last ninety years, offering an important historical record of transgender experience and activism in the United States.

»Read full article at

April 16, 2018

What Not to Say to an Isolated Older Adult

When MaryKay Kubota’s husband died unexpectedly at 49, she felt that the world kept going for everyone but her. Until that moment, the then 47-year-old mother of four, who had married at 19, managed their family’s fast-paced social life. “I didn’t have to think about what was next,” Kubota said. But after Guy Kubota’s death in 1997, even with two children still at home, “everything just stopped,” she recalled.

As her grief escalated, so did her feeling of abandonment.

“Nobody knew what to say in the situation, so they just left me alone,” said Kubota. Though they offered the standard “Let me know what you need,” Kubota, facing responsibilities she really couldn’t manage on her own, found it hard to ask for help…

»Read full article at

April 8, 2018

Changing the World’s Conversation About Aging

A new view of living longer
by Jo Ann Jenkins, AARP CEO, AARP Bulletin, April 2018
»Read full article on AARP site

Societies around the world are coming up with creative, commonsense ways of adapting to the challenges posed by aging populations and doing it with existing resources. One example is Japan’s Watch Over service. For a small monthly fee, a Japanese postal carrier will check on an older resident along the mail delivery route and relay information about the resident’s well-being to family members using a tablet. The brilliance of this model is that it takes an existing infrastructure resource (a nationwide postal delivery network) and a seemingly unconnected challenge (isolated seniors) and puts them together. It works. The cost is low, the barriers to entry are few, and the payoff is huge…. »Read full article on AARP site

March 2018

Maintaining Dignity: A Survey of LGBT Adults Age 45 and Older

Three out of four adults age 45 and older who are lesbian, gay, bisexual or transgender say they are concerned about having enough support from family and friends as they age. Many are also worried about how they will be treated in long-term care facilities and want specific LGBT services for older adults.

These were among the findings of a recent national AARP survey, “Maintaining Dignity: Understanding and Responding to the Challenges Facing Older LGBT Americans.”

»Read results of this survey at

March 26, 2018

Majority of LGBT Adults Concerned About Social Support and Discrimination in Long-Term Care

New AARP national survey finds most LGBT adults want but don’t have access to LGBT-sensitive care and services

WASHINGTON, DC—When it comes to aging-related concerns, older LGBT adults worry most about having adequate family and other social support to rely on as they age, discrimination in long-term care (LTC) facilities, and access to LGBT-sensitive services for seniors, according to a new AARP survey. Black and Latino LGBT adults report the greatest concern about future family and social supports, and greater worry about potential abuse in LTC facilities because of their race/ethnicity and sexual orientation/gender identity….

»Read full article on the AARP site

February 8, 2018

Senior Housing Needs to Increase Its Diversity Competency

by Dave Hughes

The oldest boomers are entering their 70s, which means they’re starting to enter the nation’s independent living, assisted living and skilled nursing homes. Generally speaking, however, these facilities have lagged behind the diversification trends. Many are not prepared to provide welcoming environments to residents from a variety of orientations, religions and ethnic backgrounds.

Simply demonstrating compliance with federal, state, and local fair housing laws does not guarantee that the environment inside senior residences will be welcoming for all people. Creating an inclusive environment requires the will to do so…

»Read full article on nextavenue website

January 2018

Two Guides for LGBT Caregivers

More than 3 million LGBT Americans have taken on the responsibility of being a caregiver to a loved one, according to a recent report from AARP. These two guides are designed to support the LGBT older adult caregiving community:

“Prepare to Care Guide: A Planning Guide for Caregivers in the LGBT Community”
SAGE has partnered with AARP to create this practical tool filled with information, resources, and checklists to help caregivers get organized so they can do what’s best for their loved ones.

“Caregiving in the LGBT Community: A Guide to Engaging and Supporting LGBT Caregivers Through Programming”
This user-friendly publication provides ideas, lessons learned, and best practices for expanding programs to support LGBT caregivers and those caring for LGBT older adults.